I had to go to the pharmacy to get my husband and my scripts. He had 6 for me to pick up, plus his Lovenox shots and I had my two. It was 66.00. Good Lord! I know we’re lucky too, because we have fairly low copays for our scripts…but still. We’re in our early to mid 30’s and we’re spending over 60 dollars on prescriptions?
This is not counting the pain meds my husband is on, or the 1500mg of calcium he takes everyday or the aspirin he takes or even the iron and multivitamin.
There are plenty of people with his disease who have to take more medications than he does, so we are thankful that he’s only on what he’s on and I know it’s what’s keeping him alive and relatively clot-free, but still I didn’t think that I’d be sorting out my husband’s medications at this age.
He keeps forgetting to take his morning shot too…sometimes he forgets both the morning and night ones. Which then leaves him at risk for a clot…which usually shows up in the form of a TIA or mini stroke.
This disease is no joke. People don’t understand and they don’t get that he looks perfectly fine…maybe a little tired, but he’s really sick and it’s life threatening. And it’s also not going away, won’t get better and we don’t know if it’s hereditary.
I’m running out of things to say when people ask why we haven’t or when we’re going to have kids. I want kids. I really do, but I’m so afraid of passing this mess on to a child. What this disease does to babies and little kids is just horrible. I don’t want to risk that.
When I tell people that they look at me like I just landed from Mars. What part of babies having strokes scares the shit out of me don’t people understand? I can only handle one sick person in my life and my husband’s mind and memory are so bad that I don’t think I could even trust him to care for a child alone.
I haven’t put the idea out of my head completely. But right this moment, this is where we stand on the issue. I wish people understood my fears and the risks and would just mind their own business about it. We may change our minds later down the line. We still have some time. Who knows what the future holds.
So today I spent 66.00 at CVS and then spent 45 minutes getting the pills and shots ready for the week. Hopefully the new system will help him remember his shots. If nothing else, I will keep track of them myself and know exactly how many he’s doing in a week.
And maybe, just maybe, now that he’s back on all of his meds…he’ll start feeling a little better.