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You are here: Home / Archives for causes

This Is Not What’s Going To Kill Me

March 19, 2012 | By Heidi | Filed Under: causes, family, home, life, soapbox | Leave a Comment

endometrial_cancer_awareness_grunge_ribbon_sticker-p217494889255597821tdcj_400This blog is months overdue. I’ve written it about 4 different times and scrapped it each time. I just can’t seem to get all the way through it but here goes attempt #5 anyway…maybe taking a different approach to the subject will help.

I still find it kind of odd when people at work who I haven’t seen in a while ask me how I am doing. I have to stop and think about my answer because the first thing that I think is, “I’m fine, of course. Why would I be any different?”

Thing is, I was off work for 3 months because I was diagnosed with Uterine (Endrometrial) Cancer in the beginning of November. The week after Thanksgiving I had a complete hysterectomy (including ovaries) and in January I started 5 weeks of radiation treatments.

I was off work from Thanksgiving till the end of February. So this is why they are asking me how I am doing.

Partly I believe that the outcome could have been prevented (or caught earlier) had I been going to the gyn as a woman should go. I didn’t though and here we are. I know better now and thankfully it wasn’t any worse than it was. Although I guess cancer, surgery, and radiation is pretty bad. Hindsight is 20/20, right?

I know I seem so matter of fact about this all. Partly, I have dealt with health issues with my husband for years from unknown diseases to his APS diagnosis to multiple mini strokes and mental breakdowns – his and mine, mind you. If I had a breakdown every time some health issue came our way I’d be committed. So I deal.

I’m not saying I haven’t had some issues with dealing with all of this, I certainly have. And the complete hysterectomy has thrown me into menopause which has been a blast, let me tell you. It’s been a lot of trying to process frustration that I don’t know what to do with and needing to just be alone and calm down. That and the occasional night sweat and hot flash thrown in. But again, I am dealing.

My mother was diagnosed with the same cancer a number of years ago. She was 54 at the time though and not 37 like I was. She also didn’t need radiation. She has said something to me that has rang so true for me as well. She told me that she said to herself that, “this is not what’s going to kill me” and then she did what she had to do (surgery), took time to recover, and went on with her life.

And that’s what I’m doing too.

This cancer isn’t going to be what kills me. It isn’t going to hold me back. I’m not going to dwell over it or be sad or depressed because of it. I did what needed to be done and now all of that is over.

Don’t get me wrong, some of it wasn’t easy. I was in a lot of pain after the surgery but I healed and it did get better. It took time but I took the time to heal. Radiation wasn’t easy. I won’t lie, the side effects were a bitch. I thought they would never end…but they did.

I often wonder if I should have reacted differently. I was watching a program and a woman they were interviewing said she was diagnosed with uterine cancer and her world completely stopped. That didn’t really happen for me. I had a few moments but then I was pretty much fine. I still am pretty much fine. My husband (and sometimes I think other people) was waiting for me to break down and snap but it never happened.

Is that wrong? Is something wrong with me because that’s not how I reacted? I don’t think so, but I don’t know.

Maybe I’m just wired differently.

All I know is that this cancer that I was diagnosed with, “this is not what’s going to kill me” and that life goes on.

pearheidi

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Remembering 9/11/01 – 10 Year Anniversary

September 11, 2011 | By Heidi | Filed Under: causes, soapbox | Leave a Comment

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The details of this day are fuzzy now.

I was at work and I know my husband – then fiancé – dropped off my sister, nephew, and I. We were living with my sister and nephew at the time.

We can listen to radios at my job and I remember someone saying that a plane flew into one of the World Trade Center buildings. I want to say the person was listening to Howard Stern and he was talking about it.

Anyway, I turned on my little TV – totally against the rules at work, but convenient for listening to TV channels before the whole digital TV thing recently – and saw the horror that was 9/11.

I remember people gathering at people’s desks watching mini tv’s in awe. We were talking throughout the section giving updates.

“OMG, another plane hit the other tower!”

“The first tower collapsed!!!”

“The second tower collapsed!!!”

“What is going on?”

During this time my husband called or texted or something and said he was coming to get me. He was really freaked out and frantic.

I don’t know what time it was, but my job let us go home. My job NEVER closes so we knew it was serious!!! 

I think they said something like go home and spend the time with your families.

The parking lot was a madhouse and everyone was rushing to leave. I remember not being able to find my sister and getting my nephew from daycare.

It was all kind of a blur and surreal.

Once we got home, we were glued to the TV. The footage was non-stop!

We learned of the terrorists, the people jumping from the building (how horrible), the crashes of the other planes, and of just how many people perished in the towers.

I remember seeing the planes fly into the buildings over and over again. I remember seeing the towers fall again and again. Whatever channel you watched, there was footage about the attacks on.

I remember my sister having nightmares that night about terrorists.

I didn’t feel totally safe anymore.

Things will never be the same as they were before that day. We have been at war for 10 years.

Thousands of military have lost their lives. We got the bad guy, but still the war on terrorism goes on.

Today we remember those who lost their lives in the 10th anniversary of 9/11. Gone but never forgotten.

In remembrance,

pearheidi

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Dedicated to the APS Patients Across the WORLD

June 9, 2010 | By Heidi | Filed Under: causes | 1 Comment

Today is WORLD APS DAY!

As you know, my husband had APS. He’s been diagnosed since 2004. It’s been a rocky road and pretty scary at times, but we can’t look back and can only live in the now and hope for the future.

2004 was the year that changed our lives forever. 2005 is the year when we started using that change for good.

In 2005, myself, my husband and our new friend (and fellow APS patient), Tina turned a support forum and informational website into a brand new non-profit dedicated to bringing awareness to APS and education and support to APS patients.

My first priority was to make sure our website and online support forum was informative and honest. I didn’t want another APS patient to be as lost as we were when my husband was diagnosed. I was lucky to find that first forum on Delphi and Tina to point me in the right direction.

I thank God everyday for bringing her into our lives. I wish more people would try to get to know her, because you’d see the wonderful person she is. She’d literally give you the shirt off her back.

I really hope that the APSFA has helped people learn more about APS – the real APS, not the “take coumadin and you’re cured” APS. To me, that’s the most important thing because APS is not a bed of roses. It IS life threatening. Many people die from it, and sometimes they don’t even know they have it before it’s too late.

I have met some of the most amazingly strong people during the past 5 years. I don’t know how people live with being so sick each and everyday. I guess you just get up and do what you can. I don’t know if I could do it. Especially those who don’t have great care and who are basically dismissed by their doctors or even by their friends and families.

Unfortunately, we’ve also lost some people as well – nature of the disease, I guess. It’s hard though because I have so many friends who have this disease and it hit close to home when someone passes. Way too close to home.

I wish patients got better care. I wish they got taken seriously.

Thank you to everyone who has supported the APSFA over the past 5 years. Everything we have done we do for each and every one of you. You are all in my thoughts and prayers on a daily basis. Keep fighting and keep spreading the awareness! Together, we can get the word out!

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Welcome! My name is Heidi. I live in the mitten state. I blog about my animals, my journey to a healthier me, motivational things, and just life in general. I keep it as real as possible.
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